Friday, September 10, 2010

One Last Addley Update

We had our follow up neurology appointment this week with Addley to review all the tests and figure out where to go next.  The Dr. was pleased to know that everything came back normal, though she wasn't too surprised and actually gave us some positive news.  She prefaced it by saying "your child has NOT followed the typical pattern of breath holding" but typically children grow out of it by the age of 2.  She said it is possible that it last as long as age 5 or 6, but typically (again that word) between 18 months and age 2 you will see a remarkable difference.  I'm hesitant to type it or even say it, but we haven't had a spell since that bad one that caused the 3 minute seizure in early July.  We've certainly had LOTS of bumps and bruises and tears since then, but none have provoked an episode.  This is the longest she has gone without having one.  I am hoping, praying and keeping every finger and toe crossed that perhaps she IS outgrowing it and just maybe I can rest a little easier.  The more time that passes without incident is a GREAT sign.  Our next follow up isn't until 4 months from now.  In the mean time, she goes about her crazy business without a care in the world and certainly no concept of fear.  Her newest thing is to try and jump off the two steps in the office - she watches her siblings compete to see who can jump the furthest.  Of course, she cannot jump yet, so instead just sort of trips and falls down the steps and lands in a heap of giggles.